About the treatment: It was quite interesting. My first Facebook post of the week said something to the effect of, I know three things about K, 1) It doesn't immediately knock out a migraine, 2) it gives you raging nausea, and 3) it does NOT make you sleepy. Though I don't remember much, I do remember the first day and night being quite rough. I was as nauseated as I have been in quite some time. My nurse commented that he had never seen so much come out of someone so small. Yes--I puked A LOT. I also didn't sleep that night. I think I was too busy vomiting. I had a level 5 headache entering the hospital, and it spiked to a level 9 migraine by the time they started the K, which took hours, and the K didn't take the migraine away. Luckily, they would treat me with other meds and they gave me Torodol and Zofran, Reglan, and Phenergan. It took all 3 anti-emetics before I finally stopped throwing up. But finally, my nausea was controlled and they kept the Torodol coming for the first few days too, so the pain dropped back to a level 5 and stayed there for a few days until I was finally pain free.
K does a number on the brain. I remember when I would get bored, I would just shut my eyes and watch the show. Colors would just dance in front of my eyes and shapes and colors would just bleed into each other. I remember one time thinking my brain was darker than I thought it would be. The colors were much darker than I thought they should be. I guess my brain isn't the bright, cheery place I hoped for? I don't know what I expected. I did some funny things. I called people. Drunk dialed them is more like it. I still don't know for sure who all I called. Evidently I have colorful language when I am high on K. I probably owe some people some apologies for that. And I use big words I am told. My husband tells me I spoke to my brother on the phone one night, and immediately upon hanging up the phone, my husband asked, "So what did you talk about?" To which I replied, "I honestly couldn't tell you." K makes you a little goofy. I tried to remember things and not be goofy, but I have no idea if I succeeded. I can write this because I confessed it to my husband already, but my husband's birthday occurred while I was in the hospital. At some point, I ordered Edible Arrangements to be delivered to my room for his birthday. I have no recollection of doing that. But you know--SCORE! I did not forget his birthday even in my altered state! Still though, it's kind of scary to think of all the damage I could have done with online shopping and never even remembered. I'm glad nothing has been delivered since we've been back home!!!
One interesting thing that happened was that when I first arrived at the hospital, I didn't have a private room. I wasn't expecting to have a roommate, so you can imagine that I wasn't thrilled to be moving into a room with another person. My roommate and I arrived at the same time, and she had on sunglasses, so I suspected she had migraines too. I found out she was there for her first K treatment as well. Her husband couldn't stay with her because they had sick kids at home, so he was dropping her off, getting her settled in, and then driving home to take care of their children. We became good friends in the few days we shared the room, before they found us private rooms. We called it "Migraine Camp"! As a matter of fact, when they found us private rooms, neither of us were sure we wanted to be separated. My husband still took care of her, brought her coffee and food, and the nurses gave us reports on each other. The nurses got a kick out of our friendship, I think. We were very lucky and blessed to have been put together. She was smart, fun, sassy, kind of a kindred spirit in many ways. We texted a lot in the hospital while we were high on K. I haven't read those texts since I have been out yet, but I imagine they will be quite amusing. We plan to keep in touch and have texted since we've been out of the hospital too.
The docs sent me home with K in nasal spray form that I can use up to three days per week as needed for migraines. I have used it twice so far, and I'm not totally impressed. First of all, it tastes horrible and I haven't figured out how to keep it from running into my throat at least a little when I use it. Second, it does help a little, it's quick acting, but very short lasting. I can use it up to 10 times in a day, twice per hour, but who wants to be monitoring how many times they've used a nasal spray and counting every time their pain comes back? I will give it some more trial runs, but I am not sure it's going to be effective as an abortive that I can use and still go about life, the way Zomig is, for instance. I want an abortive that I can take, it reduces my pain to a level where I can function, and then I can go about my business. If I have to take K and then snort it repeatedly, keeping count of the times I use it, with pain potentially returning between uses, it's not that kind of abortive.
So, what do I think of the K infusion overall as a migraine treatment? The jury is still out. Getting me to pain free was pretty awesome, but now I just remember what that felt like and it kind of sucks that I don't feel pain free now. For even the possibility that I might have gone weeks or months pain free, I would do it again. So I guess that was worth it for that possibility. And we may have changed the course of my near daily migraine that I was having beforehand. I am just not sure yet. But I promise to let you know....