I first have to say, right now I have a pretty damn good Migraine care team. I even have some people on the bench waiting to get in the game if I need them. That's a lucky migraine patient right there.
The team starts with doctors of course. I have doctors here in Arkansas, and I have my specialists that I travel to see multiple times per year in Philadelphia. My doctors in Arkansas are top notch. It's not that they aren't. It's just that you get to a point where you've exhausted one person'sideas, and they agree it's time to see someone new so they refer you out of state. That's what happened to me. My neurologist here, Dr. T., is pretty awesome. He thinks outside of the box and always has something new on his mind when I visit him. But he leaves the main thrust of my care to Dr. Y, in Philadelphia. I can't talk about my Little Rock docs without talking about Dr. D., my psychologist. He is a truly unique doctor. He has been my doctor for many, many years, probably longer than that relationship is supposed to last, and if I've said it once I've said it a million times, he's probably kept me alive over the past 14 years. He introduced me to the psychiatrist Dr. J. Now, I don't actually SEE Dr. J. right now, but I know he's there if I need him--he's on the bench for now. I see Dr. T, a psychiatrist in Philadelphia, along with Dr. Y, my primary headache specialist. Dr. Y has been great for my headache care. There have been ups and downs, and setbacks along the way, but overall, when he's made progress, it's been more progress than any other doctor. And after a long period of setbacks, we are beginning to make progress again.
Those are just the doctors. I have a long list of caregivers too, from family, to friends. My husband, C, is there by my side almost all the time. He brings me food, meds, holds my hand when I am sick, and comforts me however I need it. My parents step in anytime C can't be there. They stay the night, they drive me places, they provide meals, whatever I need, if they can do it, they will. My brother does the same. He'll come sit with me, or drive me places, just do whatever he can. Finally, I have lots of friends who call and show up and do whatever is needed. They sit with me, provide meals, provide rides, whatever I need.
I have such a great list of doctors and such a great list of caregivers, and this doesn't mention the online support that's available too, I can't really think of any positions that need to be filled. For a long time, I didn't have a psychiatrist, now I have two. I have the best family and group of friends. I say it over and over, but besides the seemingly never ending migraines, I am just really lucky.
June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com