Wednesday, June 12, 2013

Migraine Awareness Month #12: The Box: I am the Experiment

Today's writing prompt comes from the movie The Box: What situation in your Migraine/Headache Disorders treatment has made you feel most like a guinea pig or lab rat.  

You know, I feel like I start every one of these Awareness Month posts with the word Wow, but really, Wow.  E-V-E-R-Y-T-H-I-N-G.  Everything about being a Migraine patient makes me feel like a guinea pig.   There is no "standard treatment" for migraine.  It's all trial and error.  So after 15 years of trial and error, I am one tired guinea pig.  We try one preventive for awhile, and discover it doesn't work, so I go off of it and we try another.  And Migraine treatment is often about a combination of preventives, so even if one doesn't work, that doesn't always mean I come off of it before we try another.  Often I am on handfuls of drugs that seem not to work at all, but we are searching for the right combination so I keep taking them anyway.

This has gone on since I was 17.  Only it worked for the first five years or so and my Migraines were controlled, then things went all up-side down and things haven't been back under control since.

The latest thing we've tried is pain management.  I thought it would be pretty straightforward, just try a pain killer around the clock and it would work and ta-da, things would get better.  Nope.  I'm a guinea pig with pain management too.  We've been through three different pain management drugs so far, but I think we've found one that I can tolerate that seems to be helping some.  So maybe the guinea pig part of my treatment will end soon.  Cross your fingers for me.

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders.  The Migraine and Headache Awareness Month Blog Challenge is issued by

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