Monday, July 8, 2013

Talking about migraine without bumming everyone out

Migraine is a big part of my life. It's not ALL of my life, but I inevitably find myself talking about it wherever I go.  I try not to be a Debbie-Downer about it, but it's hard to feel like I don't bum everyone out when I talk about my struggles with migraine.  (BTW, where did the phrase Debbie-Downer come from?  I know three Debbie's and they are all gloriously positive people.) 

I especially feel like I bum other migraineurs out when I talk about my experiences with migraine.  I try to tell them "please don't judge your situation/expectations on my experiences, because I am an extremely hard to treat case," but I feel like that's not enough. When I hear of a migraineur who is worse than me or who has been chronic longer than me, my first thought is "oh no, will that be me someday?  Is that what I have to look forward to?"  I just can't help but compare our situations and put myself in her shoes.  

Then, I get bummed out about it.  It's hard to be positive when your sure your future is filled with more of the same bleakness and pain.  So if this happens to me, I know it probably happens to others when they hear my stories of migraine.  The getting bummed out and knowing your future will be filled with pain just like me. But I don't know how to honestly talk about myself, my life, without talking about migraine.  

I used to avoid talking about migraine as much as I could, for fear of looking weak or being misunderstood.  Now, I realize they are such a big part of my life I can't avoid talking about them and talking about them is a good thing.  It brings awareness to a problem that needs more awareness.  

So I guess all I'm saying is that it's a really difficult subject to put a positive spin on, so if I've ever been a bummer to you when discussing migraine, I certainly apologize. It's not my intent.  I do hope I've raised awareness of the issue without being a Debbie-Downer. (There's that phrase again…)  

And for all you Debbie's out there--stay positive!  


2 comments:

  1. I never had migraines prior to taking psychiatric medication. A quick google search for "ketamine migraine" just now brought me to your blog. I do not have them often, but last night was the worst so far. I feel for you, and I really admire your positive outlook - it makes you deserving of pain-free peace.

    Have you ever looked at psychedelics for migraine treatment? Specifically psilocybin and psilocin, the psychoactive compounds found in various mushroom species. I'm not sure if the synthetic tryptamines, phenylethylamines or even the naturally occurring DMT has the same effect. The latter is very short acting, only lasting ~30 minutes via inhalation. You definitely won't find a medical professional willing to help you access them, so you would probably have to find some "friends". I was forced to look outside the box for my problems, and speaking for myself, ketamine has done more for my depression than any prescribed drug ever did.

    ReplyDelete
  2. Trying to figure out how to "unfollow" this page. I thought connecting with fellow migraine sufferers would be a positive, supportive thing to do, but after scrolling through your 2013 posts, I don't think it would be good for me. This particular post about being a Debbie Downer is a good place to point out that if you THINK you might be something, you probably are! Maybe you'd feel better if you stopped ruminating about everything that's wrong with you and focused on the positive for a change. And let me tell you, if you are walking and wiping yourself, you are lucky. My good friend had a stroke at the age of 40 and is now in a nursing home, paralyzed. Whenever I start to feel like I'm "unlucky" to get migraines, I think of her or other people who would kill for my so-called problems. Another woman I know lost her child to cancer. Again, makes my "problems" seem insignificant. Thank you for showing me what I don't want to become. I hope you learn to get over yourself and appreciate what you have.

    ReplyDelete